Why the natural contempt Mister. K, it's just a modest proposal. Is it because it does not meet your altruistic standards? Do we know for sure that altruism is always the course of action for greater good, and no good can come from more egoistic or pragmatic approaches.
Yes, the quest for knowledge and understanding is always a valid argument. There are some caveats.
But is all knowledge worth having? Are we intended to know everything?
I'll admit I have a contradictory stance. I am yes for the former, because by nature I am a curious child. I want to know more and more. However, I do feel that sometimes we overstep the boundaries of knowledge.
How far are we willing to go in the quest for knowledge?
These humans with birth defects. Mothers carrying children. Are we willing to pull many of them aside for exclusive and full scientific research. How many tests can we conduct? How many risky drugs or procedures can we try before we are successful? Are we comfortable making knowledge more important than their lives before we find answers? Most likely I am assuming while you favor knowledge, you are not in favor at knowledge at any cost. I'm also assuming that you don't find it justified to use a human life as a lab rat in order to know and understand better. You might even argue that with modern technology we can conduct this research humanely without being intrusive or making a human life submit in the pretext of knowledge. But is that complete knowledge? Are we going to try every permutation and combination? Little knowledge can be a dangerous thing. With what degree can of certainty can you assure that this knowledge will be absolutely complete, reliable, and safer – sometime in the distant future.
Finally just because we know or understand something, does not mean we can fix it.
Nature prevails. There is always that degree of nature that is above all our capabilities. We can try fixing one thing or another, but invariably nature prevails and finds new ways to create problems. Sometimes the cure today, can become the disease tomorrow. With what degree of certainty can we guarantee that this will not be the case. With what degree of certainty can you guarantee that genetic DNA fixes will not be susceptible to natural evolution and mutation.
To me the benefits are far too obscure and unknown. To me that time, money, and effort is better invested in other humans who can be easily made into contributing members of society, not in unsustainable humans siphoning of society. Once every other human issue is resolved and we are that utopian society. Then maybe we can play the games with nature. For now there are more practical and economical approaches.
If tomorrow I'm a vegetated being for any reason, I've told my family to pull the plug. No need to siphon resources and medical benefits for a gone case. Better invested in someone who will come back for sure and do some good.